World Sickle Cell Disease Day

21 Juin, 2018, 08:39 | Auteur: Yves Courtet
  • World Sickle Cell Disease Day

World Sickle Cell Day is celebrated across world on June 19, 2018. If both parents are carriers then there is a 25% probability of having a child with AD and they should go to a suitable medical center to deal with the possibility of a child born with the disease.

Sickle Cell disease is an inheritable, genetic and fatal disease causing red blood cells disorders which has been classified as sickle cell anaemia and may lead to death.

But Dr. Hyacinth I. Hyacinth, who led the recent study that found no link between the trait and stroke among African Americans, said the bottom line is medical professionals may need to spend more time and effort treating stroke victims who have sickle cell trait. It is present on four continents: in sub-Saharan Africa and in the Maghreb, in Asia (Middle-East, Arabic peninsula, India), in the Americas, on the North (USA), centre (Guatemala, Caribbean islands), and on the South (Brazil, Surinam, Guiana), in Southern Europe (Southern Italy and Sicily, Greece, Turkey). "It is estimated that 500.000 people are born every year with this severe and invalidating condition and that 50 per cent of them will die before the age of five". Early diagnosis and treatment saves lives.

The aim is to educate and make people aware about sickle cell anaemia and also to help people know about the struggles experienced by patients and their families. Sickle Cell disease is not contagious.

Couples should be encouraged to take a sickle cell test.

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"The drug also prevents stroke and cerebral neurological problem in sickle cell patients", he said.

Ezeudu noted that absolute faith in God and awareness remains the best option for management and prevention of sickle cell anaemia, while the best treatment of the disease is nutrition integrated with faith.

The ministry of Health, with a team of researchers from Makerere University, shared results from a Hydroxyurea study, where they highlighted that this drug is safe in Uganda.

About the Sickle Cell Disease Coalition The mission of the Sickle Cell Disease Coalition (SCDC) (www.scdcoalition.org) is to amplify the voice of the SCD community, promote awareness, and improve outcomes for individuals with SCD.

As we commemorate this World Sickle Cell day, let us show some compassion to people living with sickle cell. Let us all avoid the stigma and discrimination. "In the first 10 years of newborn screening, we made dramatic improvements in reducing sickle cell-related childhood mortality".

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